fEEd me frEEly: Birthday Stats

Thursday, September 9, 2010

Birthday Stats

Sam turned 2 on September 2. I can't believe it!

My sweet sister made him an allergen-free cake, and it was so fun to watch him eat a real treat with real {delicious} frosting. To see the full birthday festivities, go here.

We haven't had our official well-check, but I took him in a few days before for weight and height checks when he was done with his Singulair. He was 21 lbs 3 oz, and measured 31 inches. I don't know how accurate the height is, but his weight stayed the same. No growth on the Singulair as far as I'm concerned. He has however outgrown his size 3 shoes, so that's a milestone. Slowly but surely, this kid will grow! He's still in 6-12 month clothes, and some 12-18 month shirts.

Right now we are doing nothing besides the 6-food elimination. I haven't started the Lomatium yet because I kind of want to get a scope first to see if he is getting better or worse. If it looks worse, then I will start the Lomatium and see what it does. Then I could tell people with surety if it actually works. I really want to be able to help other people too. I think that's the only reason we go through these trials, so we can help others around us. So things are just kind of normal around here. Nothing new yet. Sam seems to be stable, not better or worse. Although he did get sick yesterday and is on steroids again for a couple days to help his breathing. So maybe he'll gain a couple pounds again. He sure is a happy kid though! That's all I can ask for at this point. :)

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He is the sunshine of our home, a sweet, smiley, cuddly little guy who stopped growing at about 9 months. He has gained about 2 pounds in the last year, has gone through a lot of testing, and finally at almost 20 months we are getting some answers.Sam had his scope today, and the doctor said it looks like classic eosinophilic esophagitis. He has ridges in his esophagus with white plaques (which is the actual eosinophils you see). I asked if we could keep the adorable get-up. They kindly said no.

I was prepared for this, our primary doctor and the two GI doctors and allergist and new-found friend up the street had told me about it, said he looked like he had it, and wouldn't be surprised if he did. I did my research (which there's not much out there), and kind of knew going in what we were facing. In fact, I think I would have been disappointed if it came back showing everything was normal. This is something we can deal with, get under control, and help Sam live a normal happy life once we figure out what he can eat safely. It's an answer, and I am grateful for it, whatever it is. Now I won't say that answer didn't come with some emotion, anxiety, tears, and feelings of inadequacy. Following an allergen-free diet is overwhelming, even with a background in dietetics, and it was hard to decide where to even begin. Sam might eat a lot of food, but not a lot of types of food. He is picky. All of Sam's favorites are out: chicken nuggets, fish sticks, salmon burgers, noodles, sugar cereals, cookies, ice cream, yogurt, and my homemade wheat bread. And all of his dislikes were in: chicken, hamburger, potatoes, and veges. He does like rice and fruit, but after the first day he is already sick of it. He is DONE with rice chex. And I have not found any allergen-free sweet cereals.So I've been scouring the web. That was even more overwhelming, so I decided to dedicate a blog to all my favorite recipes, tips, and blogs I have found, so I don't have to try and remember where I found this or that. I hope this compilation can help others who are diagnosed with EE, as well, because there's not a lot out there on this disease. And it's hard to find recipes that are gluten, dairy, egg, soy, and nut free. Hopefully we will soon be able to cut that list down, but for now that's what we're doing.It's a roller coaster ride, and I'm sad and happy all at the same time. Sad for my poor little Sammy that's been suffering and can't have the foods that make him smile, and happy that we now know what's wrong and {kind of} what to do, and Sam will soon be a healthy little boy!