fEEd me frEEly: Our first food trial.

Saturday, November 20, 2010

Our first food trial.

WHEAT!

I'm so excited! It's been two months since Sam's last scope, so it was time to either scope again or just start adding a new food. I called Dr. Harnesberger, and based on Sam's 1 and 1/2 pound weight gain and seemingly good health, we decided to go ahead and start wheat, see how he does for the next couple weeks.

I have so many things I can't wait to give him....noodles, my homemade wheat bread (without feeling guilty), grilled cheese and quesedillas with his special rice vegan cheese, chicken nuggets, graham crackers, cookies, pancakes, cheerios....so many things I can make dairy and egg free and still taste normal because I can use wheat. And I don't have to worry about weird hidden gluten-clad ingredients like caramel color or modified food starch.

Here's to hoping Sam does well the next couple weeks, and to a happy kid because Sam is going to be in heaven!

1 comment:

GramDecember 7, 2010 at 7:06 PM
He deserves heaven and so do you!
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He is the sunshine of our home, a sweet, smiley, cuddly little guy who stopped growing at about 9 months. He has gained about 2 pounds in the last year, has gone through a lot of testing, and finally at almost 20 months we are getting some answers.Sam had his scope today, and the doctor said it looks like classic eosinophilic esophagitis. He has ridges in his esophagus with white plaques (which is the actual eosinophils you see). I asked if we could keep the adorable get-up. They kindly said no.

I was prepared for this, our primary doctor and the two GI doctors and allergist and new-found friend up the street had told me about it, said he looked like he had it, and wouldn't be surprised if he did. I did my research (which there's not much out there), and kind of knew going in what we were facing. In fact, I think I would have been disappointed if it came back showing everything was normal. This is something we can deal with, get under control, and help Sam live a normal happy life once we figure out what he can eat safely. It's an answer, and I am grateful for it, whatever it is. Now I won't say that answer didn't come with some emotion, anxiety, tears, and feelings of inadequacy. Following an allergen-free diet is overwhelming, even with a background in dietetics, and it was hard to decide where to even begin. Sam might eat a lot of food, but not a lot of types of food. He is picky. All of Sam's favorites are out: chicken nuggets, fish sticks, salmon burgers, noodles, sugar cereals, cookies, ice cream, yogurt, and my homemade wheat bread. And all of his dislikes were in: chicken, hamburger, potatoes, and veges. He does like rice and fruit, but after the first day he is already sick of it. He is DONE with rice chex. And I have not found any allergen-free sweet cereals.So I've been scouring the web. That was even more overwhelming, so I decided to dedicate a blog to all my favorite recipes, tips, and blogs I have found, so I don't have to try and remember where I found this or that. I hope this compilation can help others who are diagnosed with EE, as well, because there's not a lot out there on this disease. And it's hard to find recipes that are gluten, dairy, egg, soy, and nut free. Hopefully we will soon be able to cut that list down, but for now that's what we're doing.It's a roller coaster ride, and I'm sad and happy all at the same time. Sad for my poor little Sammy that's been suffering and can't have the foods that make him smile, and happy that we now know what's wrong and {kind of} what to do, and Sam will soon be a healthy little boy!

fEEd me frEEly

Saturday, November 20, 2010

Our first food trial.

1 comment:

This is Sam.

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