Sunday, December 25, 2011

Well hello there.

Yes, I have been neglectful to this blog. No news is good news, right? In this case, I'm happy to say that is exactly right.

So we added wheat back again in June. He did great on it, no visible reaction, and he ate wheat like none other. It's amazing how simple life can be when you don't have to try to avoid gluten. I debated whether or not to scope, because honestly, if the numbers came back higher, I wouldn't stop giving him wheat. He loves it too much and it doesn't seem to bother him in the least. So we decided to forgo the scope and start adding something else. This time we decided on soy, which I was a little nervous about. I don't know why, just a gut feeling. So the end of September we started by just adding a little bit, maybe some soy yogurt and Costco hot dog buns. No bad reactions after a week, so I went all out and got him soy milk and gave it to him every day. (Turns out Patrick likes soy milk too...)

Still good.

After two months on soy, we did a scope right after Thanksgiving. Harnsberger said something was bothering him because the esophagus looked inflamed and like it was forming ridges and plaques. BOO....we were not happy with that. Because now what do we do? Is it the soy, the wheat, both?? We would have no idea. We still had to wait for the numbers to come back to know for sure, but already I was thinking I would just cut out the soy and scope again in two months.

It took so much longer this time to get the results, but well worth the wait. Harnsberger called with the best test results we've ever had! Up to 20 eos, and it appeared the esophagus was healing because of the presence of neutrophils. We all couldn't believe it! Harnsberger said it might have looked worse if he was exposed to something like peanuts right before the scope, and it was just a reaction to that. Really, we don't know. But I'll take the good news, no questions!
(someone forgot to take off the snaps while he was out....surprise!...)

So now we are adding seafood. And this little boy loves his fish sticks. Worcestershire sauce is also a go, if needs be. Hooray for the little things!

And on a side note, Sam was back on the charts at his three year check in September, the first time since he was 9 months old. Of course, he barely was on the charts, and that was only if you measured him lying down, not standing. But at least he's growing!

In the meantime, he can't keep his hands off his new baby brother...
Merry Christmas!!

1 comment:

  1. Hi Sam

    My name is Jenna and I came across your site. You are an amazing, precious gift and special earthly angel. You are full of courageous, strength, determination, and fight. You are a brave warrior, smilen champ and an inspiration. You are a super hero, super trooper, and a tough cookie. You are full of life, spunk, joy, smiles, and sunshine. You have taught everyone about life, and the gift of life. You will be in my thoughts and prayers. I love it when people sign my guestbook.